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Life Plan Profile

We are in the process of creating an internet based, security protected, web and print based information system that produces a comprehensive multi-media profile of the person with disabilities. The foundation of the profile is a set of very detailed,yet easy to complete assessments of the person with disabilties.

These assessments are conveniently located organized in the following life categories to speed access and ease of use: Personal Character Strengths, Education, Personal Care and Awareness, Medical Conditions, Independent Living Skills, Vocational Skills, Family Financial and Legal Planning, Community Supports, Income and Expenses, Relationships, and Daily Routines.

The system can also access videos that show how to provide proper personal care or deal with behavior issues. In addition, the system is set up to store the relevant support plans used by the education system (IEP's), and the various post-school government agencies (Developmental Disabilities, Mental Illness, Vocational Rehabilitation, etc.) that provide support to people with disabilities.

Unique Features of DS&A's Information and Life Planning System

Easily Accessible and Updateable

What makes DS&A's Information and Life Planning System particularly powerful is its ease of use. The main documents is held in a security protected web-based relational database that is organized by life category and is easily accessible and updateable. A last updated field indicates when an assessment was last updated. Summary information pages, including the Likes and Dislikes Summary, Medical Condition & Awareness Summary, Vocational Summary have an import feature that summarizes the results of the detailed assessments eliminating retyping.

Flexible Design

While the life plan document contains multiple assessments not all are appropriate for every person. Young children, for example, do not need an assessment of their Independent Living or Vocational Skills. However, these assessments are very appropriate for a High School student ready to graduate. DS&A's Information and Life Planning System's flexible design options allow profile creators to pick and choose the profile design that is best for them. Profile structures can be modified and changed as circumstances evolve over time.

Accessibility Control

The system allows profile creators the ability to control online access to the profile. Only those people authorized by the profile creator can access the profile system. In addition, profile creators also control what type of access people have. Some people may be able to view and edit a profile while other people may have view only access. This feature empowers profile creators, whether the person with disabilities, parents/guardians, state agencies, or care giving organizations. Information is only shared with people that creators authorize.

Person Centered, Life Long & Common Format

What makes DS&A's information and life planning system unique is that the information emphasizes the strengths of the person with disabilities, in addition to, their support needs. The life focus allows parents/guardians to create the profile at a young age, update the profile over time and share the information with the people supporting their loved one over the course of their life. This insures that the parents perspective is not lost even if responsibility for care giving may transfer to others over time. A common information platform insures consistency and uniformity in information based decision making regardless of the venue (home, school, work or in the community).

The online and printed manuals, along with family financial and legal plans, are documents that have no ending while parents/guardians and the person with disabilities are alive. Future care givers, whether guardians or organizations will have to update the information system and manuals as needed so they can remain current and accurate.

Blueprint for Planning

One of the most important features of DS&A's information and life planning system is that in creating a life profile the assessments themselves become an important tool in organizing, parent's and guardians, so they effectively plan for the future for their loved one. Sections on family financial and legal planning, independent living skills, and vocational skills ask probing questions that parents/guardians can address to help guide them in creating as independent life as possible for the person with disabilities.

Printed Documents Supplement Online System

While the online system will be easily accessible via the internet we already have in place a printed document system that mirrors and enhances the online system. The print system allows the creation of two separate manuals: The Life Profile/Care Giver Manual and the Life Plan/Guardian Manual.

  • Care Giver Manual
  • Guardian Manual

This manual is an indexed and tabbed reference binder that is a complete version of the online system and is organized into identical life categories: Personal Character, Education, Personal Care and Awareness, Medical Conditions, Independent Living skills, Vocational Skills, Family Financial and Legal Planning, Community supports, Income and Expenses, Relationships and Daily Routines.

While the complete life profile is a fairly extensive document we have also created an abbreviated print document, known as an Essential Life Profile, that consists of only the summary documents of the various sections. This allows the person with disabilities, their parents/guardians or support organizations to only have to share the critical care highlights of supporting the person with disabilities.

In addition to the printed complete life profile it includes additional sections for copies of family legal and financial planning documents (wills, special needs trusts, guardianship papers), medical records, important personal documents (copies of birth certificate, social security card, state issued identification cards), and government agency support plans (Developmental Disabilities, Vocations Rehabilitation etc.). This printed manual (which we call a Life Plan for people with disabilties who do not need guardianship) provides, in one location, all the important information pertaining to the person with disabilities.

Uses for DS&A's Life Plan Profile

The online and printed Life Plan and the abbreviated Essential Life Plan are excellent tools to train future guardians, teachers, aids and staff on who the person with disabilities is and how best to support them.
Many families are not prepared for the confusing eligibillity based world of social services. The more organized and informed a family is the more effectively they can advocate for the services and supports they need. The printed life plan is an excellent tool to have when completing applications for social services.
The Life Plan manual along with a Disability Services & Advocacy's line item budget provide outstanding justification for legal claims involving personal injury litigation and divorce related child support. The printed document can provide the court an excellent visual history of how the disability affects the person with a disability. In addition, by defining the costs of care through a line item budget attorneys can then justify lump sum settlements to cover the cost of care over the lifetime of the person.
  • Training and Emergency Manual
  • Organizational Tool
  • Justification for Legal Claims
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